Last updated: November 2023
Your privacy is important to us. When you provide information to us via our website, we protect it according to this policy. To provide clear and transparent information about how we process your personal data, we have divided our Privacy Policy into different sections.
Table of Contents
- Contact details
- The data we collect
- The need for your personal data
- Protection of your personal data
- With whom we share your personal data
- Your rights regarding your personal data
- How long we keep your personal data
- Children and Adolescents
- Updates to our Privacy Policy
- Contact details
The Health Panel is owned and maintained by Patiro ApS. Since Patiro (we) process your personal data, Patiro acts, according to the General Data Protection Regulation (GDPR – Regulation (EU) 2016/679) as a Data Controller, which means that we are responsible for the safe handling of your personal data. This does not only apply for the EU. We also oversee your data safely and with great care within the UK, USA, and Canada.
Patiro ApS
Tagholm 21
9400 Nørresundby
Denmark
VAT: DK35660348
If you have any questions, please do not hesitate to contact us at info@health-panel.com or +45 89 87 82 17 where we will answer all your questions regarding the handling of your personal data.
- The data we collect
When you visit Health Panel's website, we collect personal data about you, such as name, email address, location data and IP address. You are always welcome to contact us if you have any questions regarding the data we collect.
- Sensitive data
When signing up to Health Panel, we also collect sensitive data, which is a special category of personal data where we will process this data under more restrictive rules. When we refer to personal data in this privacy policy, sensitive data is included. This could be information about ethnic origin, genetic data, and health information. This collection will be limited to specific and necessary data of potential clinical trial participants where it is needed to determine eligibility for specific clinical trials. Furthermore, the sensitive data will be limited to what is necessary for the purposes for which they are processed. Sensitive data is collected to determine eligibility for specific clinical trials or for potential patients needed to determine appropriateness for a given medical practice.
- Medical conditions
- Severity of condition
- Medical test results
- Height & Weight
- Lifestyle/habits (e.g., exercise, smoking)
- Prior medical procedures
- Medical symptoms
- Ethnicity
- Existing participation status or willingness to participate in a clinical trial
- Choice of physician or medical clinic
- Requested or actual appointment date and time
If you choose to provide us with your personal data, we will use it to provide you with the information you have requested (which may relate to our products or services), or to communicate with you by phone, email, or text message for other purposes you have requested in your enquiry.
- The need for your personal data
Patiro collects, processes, and stores your personal data for the purpose of connecting you to a clinical study and contacting you in case there is a match. For this we need your personal data, of which, in case of a match, we will contact you by phone to verify your personal data and to collect a verbal consent to disclose your data to scientific institutions conducting research projects. These research projects are without exception approved by the Ethics Committee.
- Protection of your personal data
Your personal data is not only protected by our quality, commitment, and ambitious standards. It is also protected by law. Patiro is compliant with: EU: General Data Protection Regulation (GDPR); USA: Health Insurance Portability and Accountability Act (HIPAA); Canada: Personal Information Protection; Electronic Document Act (PIPEDA) and UK: The Data Protection Act 2018.
We employ a series of physical, technical, and administrative security safeguards to reduce the risks of loss, misuse, unauthorized access, disclosure, or alteration of data.
- With whom we share your personal data
We may disclose personal information collected through this website to affiliated third party service providers, such as IT support services, customer service providers, and other services providers that support us and facilitate the services we provide to you. Data provided to third-party service providers is anonymised meaning that the person cannot be identified.
- Your rights regarding your personal data
Depending on our reason for processing your personal data and applicable laws, you have certain rights regarding your personal data. We want to make you aware of these privacy rights.
- Right of access
You have the right to request copies of your personal data.
- Right to rectification
You have the right to request that we correct any information you believe is inaccurate.
- Right to erasure
You have the right to be forgotten, which means that your personal data will be erased. If you want your personal data deleted, please contact us by email, post, or phone. This, however, only applies in certain circumstances and there might be cases where we are legally obliged to keep your personal data for a while, and therefore may not be able to delete it right away.
- Right to restrict processing
Under certain circumstances, you can request we restrict the way we use your personal data. This serves as an alternative to a request for us to delete the data as mentioned above.
- Right to withdraw consent
When entering Health Panel’s website, we ask you to consent to cookies and the terms and conditions in this Privacy Policy. You are always able to withdraw that consent. We have made it easy for you to withdraw consent here. This also applies if you choose to complete the study questionnaire on Health Panel, where you consent to the collection of your health data, and with consent allow Health Panel to save personal data for use in other studies. In this case, you can withdraw consent here. Furthermore, your data can be beneficial in the search for new potential study subjects, and we may use it for targeting purposes like this.
- Right to data portability
You have the right to request that we transfer the data that we have collected to another organization, or directly to you, under certain conditions.
- Right to object
You have the right to object to the processing of your personal data in certain circumstances.
- How you may exercise your rights
You may exercise any of the foregoing rights by contacting us at info@health-panel.com or +45 89 87 82 17. We may ask you for additional information to verify your identity and reserve the right to limit or deny your request if you fail to provide sufficient information to verify your identity.
As mentioned above, there may occur situations where we are entitled to deny or restrict your privacy rights due to legal circumstances. Please also note that if you make unfounded, repetitive, or excessive requests (as determined in our reasonable discretion) to access your personal data, you may be charged a fee subject to a maximum set by applicable law.
- How long we keep your personal data
We retain your personal information for the period necessary to fulfil the purposes outlined in this Privacy Policy unless a longer retention period is required or allowed by law or to otherwise fulfil a legal obligation. We periodically review the data we hold, and erase or anonymize it when we no longer need it.
- Children and Adolescents
If the clinical study involves minors (age below 18 years), the parent(s), caretaker(s) or legal guardian are required to give consent allowing them to participate in the recruitment process. When answering the questionnaire, it is possible to fill in the contact information and health related state on behalf of the minor. Should the minor match for a current study, the contact to the minor is overseen through the parent, caretaker, or legal guardian.
- Updates to our Privacy Policy
We are committed to complying with fundamental principles of privacy and data protection. We therefore regularly review this Privacy Policy to keep it up to date and in accordance with applicable principles and legislation. The Privacy Policy is subject to change without notice. We encourage you to stay informed and read our Privacy Policy when you use the Health Panel to be informed about our information practices and how we protect your privacy.
